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Author | Topic: Want to help anyone I can |
Stray Cat POA Site Supporter Prowler Junkie From:Dayton, Ohio, USA |
posted 06-14-2024 09:27 AM
Some of you know I was diagnosed with Prostate Cancer in Feb. I immediately started researching and reaching out. This is a wildly mis-understood disease. Very few people understood the severity of this disease "every man has it, it won't kill you, don't worry about it" from my very own brother. But read this and you will have the facts. It is the second leading cancer cause of death in men. Don't take it lightly and get your PSA tested yearly. http://www.cancer.org/cancer/types/prostate-cancer/about/key-statistics.html 1) I received support and advice from a number of people on this site. It was super valuable and important. Others who helped, and others who have had this, feel free to chime in. I am not mentioning anyone as this can be a very private discussion. But for me, the value I received here and actually with our SSR friends has been invaluable. And I want to pay it forward, I'll share another story later. Like us, the SSR folks are mostly older guys who will run into this. If you would like, I'll post the SSR info here. It is a bit more descriptive. In the end, we are all in this together. Feel free to reach out to me with any questions. I am not a Dr. I am an Engineer and I do my research, and I did just that. Helping just one of us, would be worth the time it took to post this. Again, I understand this is a private and sensitive subject. I had a prominent member praying for me, reaching out regularity as well. I think that is important too. My Family had a prayer service over Zoom on Wednesday, and that sent me off with the proper attitude. Here to help if needed, John This message has been edited by Stray Cat on 06-14-2024 at 09:29 AM |
cdeluca99 POA Site Supporter Prowler Junkie From:Patchogue, NY, USA |
posted 06-14-2024 10:25 AM
GOD BLESS YOU John. You are a good man and I am honored to call you my friend. Very happy you are recovering and will be around for a while. Take care of yourself brother. Still praying for you 🤙🏻 This message has been edited by cdeluca99 on 06-15-2024 at 03:28 AM |
BeWare POA Site Supporter Prowler Junkie From:Acworth , Georgia , USA |
posted 06-14-2024 11:31 AM
God bless you John. You have are thoughts and prayers that you will beat this . |
u00tjs2 POA Site Supporter Prowler Junkie From:ft wayne, in, usa |
posted 06-14-2024 05:14 PM
John, Thanks for the info. This can be a killer if left unattended! Glad you were able to get surgery. ------------------ |
Kpeters POA Site Supporter Prowler Junkie From:Josephine , Texas, United States |
posted 06-14-2024 06:22 PM
John,I’ll be here for you buddy. Support helps, push everyday, never let yourself get down. If you do reach out. Kirk |
padroo POA Site Supporter Prowler Junkie From:Chesterton, IN, USA |
posted 06-14-2024 07:36 PM
Get well soon John. |
garysss POA Site Supporter Prowler Junkie From:Baltimore, MD, United States |
posted 06-14-2024 07:54 PM
Hoping a quick recovery John. Thanks for posting info also. |
jimsutton POA Site Supporter Prowler Junkie From:Ocala, Fl., usa |
posted 06-17-2024 06:24 AM
Stay positive as You can I had it all so and made it . any one over 40 needs to have there PSA checked .Cancer cures have come a long way .. God Bless ... |
Stray Cat POA Site Supporter Prowler Junkie From:Dayton, Ohio, USA |
posted 06-17-2024 07:19 AM
Thank you all very Much! Home, will take the week to recover and have all the wierd stuff pass, 3 months till normal function and 6 months until 100%. All going according to plan, the situation is uncomfortable, not painful. Oddly enough, my own brother NOW admits he is having trouble. Jim is correct, the PSA is a simple test and it is the ONLY thing that led us to find my cancer. EVEN if you have to have a radical Proctectomy, this is survivable and with the right Dr. quality of life CAN be preserved. Be on top of this, that is my best advice. John |
BeWare POA Site Supporter Prowler Junkie From:Acworth , Georgia , USA |
posted 06-17-2024 11:26 AM
I’ve past the age where they continue to provide this test. I guess they figure at this age I have already beat the odds. At least that’s the case according to my neighbor who’s not a doctor. He also says that my little Yorkshire Terrier Chewy will probably add 5 years to my life. |
Tomcal POA Site Supporter Prowler Junkie From:Long Island, NY, USA |
posted 06-17-2024 03:16 PM
Glad procedure went well, John. Speedy recovery. Don't mean to be nosey, just thinking this might be helpful to others. What type of prostrate procedure did you have? What was your Gleason Score? Name of Doctor and hospital? And finally, why you choose to go to Floridia for procedure. |
Tomcal POA Site Supporter Prowler Junkie From:Long Island, NY, USA |
posted 06-17-2024 03:38 PM
quote: "Medicare Part B (Medical Insurance) covers digital rectal exams and prostate specific antigen (PSA) blood tests once every 12 months for men over 50 (starting the day after your 50th birthday)." "PSA blood test: You pay nothing for a yearly PSA blood test." There is no Medicare age cutoff date for a PSA test. Neighbors are great to chat with and share a beer. And I stayed at Holiday Inn Express, which makes me and expert, LOL. Get a PSA test every year. Better safe than sorry. |
padroo POA Site Supporter Prowler Junkie From:Chesterton, IN, USA |
posted 06-17-2024 05:27 PM
If you have original Medicare you can go to any hospital in the country that accepts Medicare. If you are on a Medicare Advantage plan you are locked into you network. Medicare Advantage is not Medicare, it is private insurance. Some people don't know this. |
BeWare POA Site Supporter Prowler Junkie From:Acworth , Georgia , USA |
posted 06-17-2024 06:45 PM
I still get the blood test. We have Medicare Advantage. |
Stray Cat POA Site Supporter Prowler Junkie From:Dayton, Ohio, USA |
posted 06-17-2024 07:32 PM
Sooooo much to discuss along these lines. I had a HIFU procedure. I sought out 3 separate opinions. My Dr's in Dayton were awesome, BUT as stated above, Dr. Walsh called me back after I read his book. He made it clear 1) You have time. Most of your cancer is slower growing. I could have opted for watchful waiting (now called active surveillance). I was right on the edge and the Myriad Genetic test I did confirmed this. I had Gleason 3+4=7 and one core with Gleason 4+3=7. I was rated favorable, Intermediate. Doc also said : 2) Pick the Dr. with the best track record of the procedure you will have. I chose Dr. Scionti in Florida for a number of reasons. He had the % of his patients who the cancer returned and all the data on Impotence and Incontinence. He has done over 3000 of these procedures. My Doctor in Dayton is awesome. LONG story - but 5 years ago I helped pay for a friend who had no money to have this procedure done. Shelley and I helped him pay for it, at that time Insurance was not paying. I called John and asked him who he went to and why (His PSA is now .002). He went to Dr. Scionti. My Doctor in Dayton told me he is absolutely one of the best. I'll let you all know once I get further down the line. The Lakewood Ranch Medical Center where it was performed was awesome as well. I have good medical insurance (Although I opted for the High Deductible this year so out of pocket is a LOT !) But my company gives us great options. Again, if anyone wishes to chat about it, I am available. John |
Stray Cat POA Site Supporter Prowler Junkie From:Dayton, Ohio, USA |
posted 06-17-2024 07:36 PM
That video is hilarious....
quote: |
Stray Cat POA Site Supporter Prowler Junkie From:Dayton, Ohio, USA |
posted 06-17-2024 07:48 PM
What became immediately apparent is that the majority of men are treated by their urologist. As you, a Man, walk into your urologist's office, see that they also are working with 70 year old women for kidney stones etc. In other words, they are pathologists, radiologists, Urologists, Surgeons etc. With Breast, Cervical, Uterine etc. cancer, woman have a choice of a doctor who specializes in Female cancers. Dr. Scionti gave up his Urology Practice 15 years ago to focus on helping men with Prostate Cancer. I think I read somewhere that there are less than 10 Doctors in the US that focus solely on Prostate Cancer treatment for men. I stated Dr. Mark Walsh - Its Doctor Mark Scholz. This book was fascinating. Also, a fellow member here was an inspiration - he did the same thing long long ago, sought out the surgeon who could preserve his quality of life and that Dr. still has a lot of data and videos on line. Sadly, that Dr. has passed away. But the research he did, was exactly what I did. Again, a number of members here really helped me. John |
TucsonJer POA Site Supporter Prowler Junkie From:Tucson , AZ., USA |
posted 06-24-2024 02:37 AM
Praying for a complete and speedy recovery John. Take care my friend |
tbonelynch POA Site Supporter Prowler Junkie From:Fayetteville, GA, usa |
posted 06-24-2024 03:00 PM
Hey John, Hope all is well and you did your research and chose what was right for you. My urologist only did the removal surgery, but based on my age he wanted me to see the radiologist to get another opinion. I could tell that he was not recommending "his" procedure but wanted me to make my own choice. I had proton radiation treatment for a different issue back in 2018 and many of the other patients were there for prostate cancer. So in 2022 is when I got the prostate cancer diagnosis. I got my proton radiation treatment and my PSA keeps going down with every test, so I feel it was a success. I was told about the side-effects of all the options and this helped me make my decision. Hope to see you in October. Tom |
Stray Cat POA Site Supporter Prowler Junkie From:Dayton, Ohio, USA |
posted 06-26-2024 09:20 PM
Thank you all - much appreciated. Tom, this seems like really good news on your part - PSA going down is excellent! John
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MDProwler < POA Site Supporter Prowler Junkie From:Fallston, Md, Usa |
posted 07-04-2024 02:20 PM
John, Glad everything has worked in your favor. There can never be too much sharing of this type of information. Guess I should get that free😁 Medicare PSA test soon to feel safe. Thanks for all the information and take care. |
Stray Cat POA Site Supporter Prowler Junkie From:Dayton, Ohio, USA |
posted 07-04-2024 07:19 PM
Yes - please do, Gary. My brother went after I shared my situation. His was 8.49. Not great news. He is now scheduled for an MRI. A dear friend went once I shared with him. His was high, an exam found a nodule. He is now scheduled for an MRI. These save lives. Better Sooner than later. Men don't want to talk about this stuff. I get that - But it's life saving. A simple blood test. No big deal. Again, I had zero symptoms. Just my PSA went up. So in due time, it would be good to go get it checked. John |
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